Sunday, January 11, 2009

i feel so lost

so my son doesn't like to eat. anything. except chicken nuggets, french fries, banannas, pizza, and apple sauce. i know, "gee heather, get over it. you have a picky eater". but i have a picky eater that vomits. even the things he likes. he weighs 58 lbs. and is almost 60 inches tall. he is not healthy. every meal is a fight.

every meal.

and i don't know what to do. the doctors have him on another stomach med. hoping it will help. crisis point - that's been mentioned.

and it doesn't help that he'll be eating something going "oh, this is heaven" and we think, thank god. one meal down without a tantrum or puking. and woo-hoo, there's leftovers. next meal will be easy too. but no. next time "well this isn't the same" because it looks different from being reheated. so he won't eat it. so he's picky and autistic, but come on EAT!

and he's 8. that's a lot of vomit when it happens (8 times in the last 3 weeks). the doc thinks it's behavaioral (duh) and anxiety induced (duh again). but at 8 one can't really tell you what's going on. especially when you have issues with verbal communication anyway. not that i want to put my little man on more meds, but anything to help him calm down. we are using flower essences, aromatherapy, and crystals. but i am ready for a prescription.

and it's all compounded by the fact that someone else got him first. made him, and raised him with all the issues we are now sorting out with our blood, sweat, and tears. it's no wonder i'm having health crisis after health crisis.

he's 8 for god's sake. life should be fun, breezy, fancy free. i'm so sad he didn't get that ticket to this ride. i'm so sad that his 8 little years have been filled with such sadness. that his autism makes him see the world so differently. that his body process his senses so differently.

between the not eating right, having to be reminded to snack all day to keep up his calories, having to remind him to go to the bathroom (if we don't, he has accidents), remembering if and when he pooped last, reminding him to remember what i just asked him to do - every sentence i speak in my house starts with his name and ends with "please go do that now, again".

these have been the longest, hardest, most rewarding months of my life.

1 comment:

girlysmack said...

This post made me cry. What a great mommy you are...

I know you've probably heard it all, but have you tried giving him Pediasure to drink? Even if he gets sick maybe some of the calories will make it in. We gave it to Sadie as "chocolate milk" when we were worried about how skinny she was. It was when she was 2 and not eating anything and the doctor (lovely woman) told us: "If all she will eat is pancakes, give the kid pancakes. As long as she eats something."